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Appeal to help Faversham's Coral Scott who has bone disorder Crouzon syndrome

00:01, 15 February 2015

Could you help make dreams come true for a five-year-old Faversham girl with a rare bone disorder?

Adorable Coral Scott, an Ethelbert Road School pupil, has Crouzon syndrome and has spent most of her young life in and out of hospitals.

Despite her age, she has already had three major operations, one at just three months old, and is preparing for yet another.

Coral Scott with family friend Marie Wyles and mum Jade
Coral Scott with family friend Marie Wyles and mum Jade

In a bid to bring optimism into Coral’s life, friend of the family Marie Wyles has pledged to raise money to make “dreams come true” for the youngster, all of which will be revealed at a quiz night later this year.

Crouzon’s, which affects one in 100,000 people in the UK, is a deficiency in one of the genes which affects the growth of the middle section of the face.

Coral’s first operation was craniosynostosis surgery, where the skull is broken and skull plates fused – an incredibly traumatic procedure for a tiny baby.

Coral Scott has Crouzons syndrome
Coral Scott has Crouzons syndrome

After two more operations, one of which was filmed and documented on TV due to its complexity, Coral, of St Mary’s Road, still faces tougher times ahead.

She will have to have a facial frame to pull the middle part of her face back out to release the pressure within her skull. The procedure is so invasive that they will have to break the bones in Coral’s face.

She will spend more than four months in hospital, and will then have to wear a metal frame around her head for up to six months – blighting yet more of her precious childhood. But when Faversham woman Marie met Coral’s mother, Jade, she was instantly touched.

"Every little girl deserves to have their dreams come true..." - Marie Wyles

Mother-of-two Marie, 28, said: “Coral is a special little girl. You see many other children moaning about a cold or something minor, and little Coral just gets on with doctors prodding and poking and operating on her, as if it was normal.

“Every little girl deserves to have their dreams come true and I hope that people can spare the littlest amount to make this happen.

"She has been through so much in such a short period of time.”

Marie also hopes to raise money for the craniofacial unit at the John Radcliffe Hospital in Oxford and the Ronald McDonald House.

The Ronald McDonald House offers accommodation for family members when their loved ones are staying at the hospital.

Marie is hoping to put on a family quiz and entertainment night later this year and money is already being raised for Coral’s surprise, due to be announced during that evening.

Coral Scott with her mum's friend Marie
Coral Scott with her mum's friend Marie

Marie added: “We go through life on a day to day basis in our own little routine, not really thinking about what others go through and their daily battle.

“If everyone looks closely, everyone has a little princess in their family who is just like Coral in so many ways.

“If people can help, it would be amazing if we could raise enough for her surprise, and raise a little for the charities which help Coral and her family so much.”

To donate, visit www.gofundme.com/ludd2k

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