A little boy whose battle for survival touched the hearts of people across Medway has enjoyed a magical holiday, after first having his wish refused.

Oakley Orange was originally told he did not qualify for a treat from the Make-A-Wish Foundation because the charity had not heard of Stevens-Johnson syndrome – a condition which causes the skin to burn from the inside out and almost took Oakley’s life in 2013.

Make-A-Wish was contacted again more recently and this time it agreed to grant Oakley his wish.

The charity wants to help more children like him who do not have a terminal illness but have a condition which affects them every day.

The nine-year-old still suffers from scarring, memory loss and sight problems; he does not sleep well and he has difficulty walking so he sometimes uses a wheelchair.

But he did not let his health get in the way of enjoying his dream trip to Norway.

Oakley had been fascinated by the Northern Lights ever since he saw it on a computer game.

He came rushing downstairs to show his mum pictures of it on an iPad in amazement.

So he knew exactly what to wish for when Make-A-Wish volunteers came to visit him –he wanted to see the natural phenomenon in real life.

Oakley was accompanied by his parents Lorraine and Steven along with his siblings Tilly, eight, Ellis, 14, and Maisey, 15.

The family enjoyed a husky ride, a reindeer experience, and luckily, got to see the Lights in all their glory.

When Oakley first saw them he was speechless.

Lorraine remembers Oakley kept saying: “Wow mum, look!”

She said: “He has a cuddly husky animal toy called Isabelle he takes around with him so he loved meeting real-life huskies.

“He also wanted snow and there was a blizzard when we arrived. We had to walk across from the plane to the airport so Oakley loved it.

“My favourite picture from the trip is him catching a snowflake on his tongue.”

Oakley is due to have two operations on his foot this month and the trip given him a real boost.

Lorraine added: “The holiday was magical. It’s made Oakley feel like he can do anything because he proved he can cope with different environments.

“It gave him a purpose and showed he can go out and do things.

“We don’t often get chance to do things together as a family and we can’t just get up and go somewhere.

“To have gone away on the wish and get away from hospitals and daily life was amazing and has made us realise we can have a sense of normality.

“That time together was four days of bliss. Oakley keeps mentioning the wish and will always remember it.”