Find local news in Kent

Home   Medway   News   Article

Rochester tot Leilani Aisthorpe returns home after major heart surgery

11:56, 01 February 2022

updated: 12:02, 01 February 2022

After a week recovering in intensive care following life-changing heart surgery a sick tot has returned home.

Leilani Aisthorpe was born with a condition so rare it was believed only a doctor in America could operate on.

Leilani after her heart operation. Picture: Louise Aisthorpe
Leilani after her heart operation. Picture: Louise Aisthorpe

But after months of looking for a solution, her family managed to locate a specialist consultant in London to perform the procedure.

The one-year-old was[put in intensive care since her operation on Monday, January 24 after becoming really ill due to complications with her chest drain.

She also suffered a tear in one of her blood vessels during the surgery and is now on a special diet for the next four to six weeks as she recovers.

Mum Louise said: "It is going to be a long recovery and we are back in the hospital this weekend for tests and check up.

"Leilani is OK, she is in a lot of pain especially when the pain relief wears off."

Mum Louise, Leilani and dad Leon. Picture: Louise Aisthorpe
Mum Louise, Leilani and dad Leon. Picture: Louise Aisthorpe

Louise, 36, explained the first operation was to re-route Leilani's artery and due to the complexities of her condition cannot be treated on the NHS.

It originally cost £40,000 but due to complications, further tests, procedures and overnight stays, it has increased greatly.

The family of Hathaway Court, Rochester, are now looking at an extra £15,000 bill.

Leilani has a condition called Aberrant Right Subclavian Artery (ARSA), which means the youngster has a fourth vessel branch out of the aortic arch which goes behind the windpipe and the oesophagus.

She also suffers from a rare condition where three-quarters of her right lung is dead.

Leilani was in intensive care for a few days after her heart operation. Picture: Louise Aisthorpe
Leilani was in intensive care for a few days after her heart operation. Picture: Louise Aisthorpe

Due to her two conditions, Leilani struggles. She cannot lie flat or eat solid foods and must be fed every two hours, 24-hours-a-day but this leads to a lack of sleep and she can also have episodes where she stops breathing

If you would like to donate to the family's fundraiser you can do so here.

This site uses cookies. By continuing to browse the site you are agreeing to our use of cookies - Learn More